I started this treatment about a year and a half ago, but during that time, I’ve been in constant decline. I was diagnosed 21 years ago, so I know the long game—but this feels different.
Every time I get the treatment, I feel the steroids kick in. There’s a boost that lasts about a week, then a crash, and then I’m back to baseline. But the baseline keeps slipping. The only real effect I notice is from the steroids—not the treatment itself.
After reading an article about the data behind it, I can’t shake the feeling that this might not be working at all.